I don’t even know how to start, so I’ll just jump in and write.
Daughter, Ben’s mom, is in End Stage Liver Failure. She spent half of April and most of May in the hospital. We are in the early stages of getting her on the transplant list. If she doesn’t get a new liver, she will die. The fact is, she could die anyway. We are hopeful and she’s fairly stable considering how sick she is. I’m learning how much the liver does for the body.
Ben is growing growing growing! He won’t be 15 years old until September but he’s growing so fast that he has stretch marks on his skin. He wears a men’s size large now and is about 5’10” tall. He’s been doing pretty good, behavior wise, with all the stuff with his mom. I’ve been his primary caregiver forever anyway
Younger Daughter is busy busy busy! They got out of the cannabis industry and now they’re working as a sous chef in the Hipster part of town. They help with Ben when they can, but the restaurant is booming, and their hours don’t fit with ours, so I’m mostly on my own.
I wrote previously about the issues I was having getting meds into my Intrathecal Pain Pump… I think I did anyway🤪 That is still an issue. I have meds in my Pump finally, but the rate is too low and I’m still having to rely on oral medications. My pain is still not well controlled. It may never be again, especially since my stress levels are beyond ridiculous!
My mental health is mostly good, but I’m beyond fried! I’m not sleeping well, which is normal, but it’s worse. I’m very busy keeping the house running, taking care of Ben, and getting Daughter to all of her appointments and helping her do things she can’t do on her own.
As a topper, the owner of our house wants to remodel so he can charge more for rent. We’ve been beyond lucky to pay $1800 for a 3 bd 1 bath with a yard. He told us we have til January of next year to move. I can’t even think about that right now.
There have been dozens of other problems, and annoyances to keep me on my toes. But I’m not gonna go into all that.
I do still read the occasional posts you guys write, but I’m lurking. I don’t have the mental bandwidth to chat, tho I absolutely still cherish all of the connections I’ve made with you! I’m still around, and I’ll be back at some point.
HUGS!!!
King Ben's Grandma 